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"Hello, my name is Danielle Sole. I'm 56 years old and this is my story.
I was diagnosed in September 2024 by Professor EDMUND LAU from RPA RISPIRTIY CLINIC with a Disease called CTEPH, know as Chronic Thromboembolic Pulmonary Hypertension. Upon diagnosis it was classified as Servere and INOPERABLE.
What this means it is a serious condition where un-dissolved blood clots turn into scar tissue inside the lung arteries.
This scar tissue blocks blood flow and raises blood pressure in the lungs, which strains the right side of the heart.
This also affects my heart know as Pulmonary Hypertension and left me with a High Risk of right side heart failure.
I became wheelchair bound within a year form being diagnosed and needed the use of a Oxygen Therapy 24/7.
This is a Rare Disease because sadly there is No Cure and early Detection is vital. My disease is classified under the World Health Organisation in 1 out of 5 Pulmonary Hypertension, CTEPH being RARE because there is no cure.
Sadly I Passed away on the 7th of Augast 2026.
Please HELP me Danielle Sole, raise awareness of this Disease because very early detection is crucial for extending your life.